Accessing CGRP blocking Migraine treatments can be a time-consuming, frustrating experience. My doctor and I first started discussing this option about six months ago. When we finally decided to give it a try, it took about three weeks to get an initial response from the company and another six weeks before I received my first dose. That’s when I discovered something very important. I couldn’t just sit around waiting for a phone call, a letter, or a delivery. If this was going to work, it would be my responsibility to make it happen.
We’ve all been waiting too many years for a better option. It’s difficult to contain our frustration and impatience. Yet that’s exactly what we must do. There are millions of people just like us who are trying to get access to these medications, too. It’s a long line full of frustrated, impatient, hurting people. A little patience, no matter how difficult to muster, can go a long way toward making the process easier for everyone.
Expect delays and long wait times. When calling to check on the status of your approval or deliver, plan to wait on hold for up to 30 minutes. Set aside the time. Make the call when you can put your phone on speaker or wear headphones. You may be asked to fill out forms, applications, or provide documentation. Prepare yourself with the proper mindset, expecting that this will take work and time.
Instead of focusing on the outcome we desire, we can think about our options for each result. What if our phone call isn’t returned? What if the medication isn’t delivered as promised? What if our request or appeal is denied? Planning for all outcomes prevents us from giving up when things don’t happen the way we want.
- Proactive action
Waiting for a phone call, email, letter, or delivery can be agonizing. When that promised response doesn’t happen, we can easily feel overwhelmed by our frustration. As difficult as it is, we’re ultimately responsible for taking care of these issues. If we’re owed a phone call or delivery that doesn’t come, it’s up to us to reach out. We must make the time to call to check on the status of our concern. We can track the progress by keeping notes all in one place. Write down every conversation, noting the date, time, name of the person, and the result of the call. Set reminders to follow-up, too.
When we feel frustrated, it’s okay to take a break or call a friend to blow off some steam. The important thing is that we return to the process. As exhausting as it is, no one else is going to do it for us. This is our health. We can’t afford to give up.
The people who answer the phone and reply to our emails have a job to do. Showing them kindness can go a long way toward gaining their cooperation. No matter how difficult the process, it’s a good idea to thank them for their hard work.
Knowledge is power.
Take a look at all the access options for each of the new CGRP blocking Migraine treatments. Knowing our options gives us the power to make informed decisions. It also prepares us with realistic expectations. Both are necessary if we’re to form a winning game plan. Take a look at the many options available to help us gain access to these new treatments.
But wait, there’s more!
Patients not eligible for any of these programs may still qualify for other programs. Check out the Partnership for Prescription Assistance (PPARx). PPARx does not directly provide free or reduced cost medication. Instead, they’re a clearinghouse for many different assistance programs. They connect patients in need with resources that may be able to help. Call them at 888-477-2669 or visit their website at www.pparx.org.
- Aimovig Ally™ Program
- Aimovig™ Access Card
- Service Request Form
- Prior Authorization and Formulary Exception sample letters
- Amgen Safety Net Foundation
- Ajovy™ Savings Card download
- Shared Solutions
- Prescription & Service Request Form
- IAssist.com – physician portal
- Emgality™ Copay Program
- Online Application
- Health Care Provider Portal
- Lilly Cares Foundation
- Income Criteria
- Acceptable Proof of Income documents
Many thanks to Shoshana Lipson from the CGRP & Migraine: Aimovig, Ajovy, Emgality & more Facebook group for her valuable contributions to this guide.